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Vivianne's CTLA-4 Deficiency Story NIH

Vivianne's CTLA-4 Deficiency Story NIH

When Answers Matter: Living With CTLA-4 Deficiency

For many families living with primary immunodeficiency (PI), answers don’t come easily. Symptoms can appear slowly, change over time, or affect multiple systems in the body—making diagnosis a long and frustrating journey. Vivianne’s story is one example of how persistence, connection, and the right care can make all the difference. Vivianne lives with CTLA-4 Deficiency, a rare primary immunodeficiency that affects the immune system’s ability to regulate itself. Rather than si

Jan 8

A Second Chance for Simon: Living with NEMO Deficiency Syndrome

A Second Chance for Simon: Living with NEMO Deficiency Syndrome

A Second Chance for Simon: Living with NEMO Deficiency Syndrome

When Simon was born, there was no immediate sign that anything was wrong. But at just 11 days old, he was hospitalized with a high fever...

Sep 5, 2025

Yellow Bear Foundation Opens New Immunology Clinic in Peoria, Illinois

Yellow Bear Foundation Opens New Immunology Clinic in Peoria, Illinois

Yellow Bear Foundation Opens New Immunology Clinic in Peoria, Illinois

Peoria, IL — The Yellow Bear Foundation is proud to announce the official opening of the Yellow Bear Foundation Office of Immunology &...

Aug 17, 2025

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